Ream, E., Pedersen, V.H., Oakley, C., et al. 2013, ‘Informal carers' experiences and needs when supporting patients through chemotherapy: a mixed method study.’, European Journal of Cancer Care
Informal carers provide important emotional support to patients having chemotherapy and assistance in monitoring and managing side-effects. If they are inadequately supported in this, patient and carer morbidity may result. Read more.
Camic, P. Williams, C.M, Meeten, F. 2013, ‘Does a ‘Singing Together Group’ improve the quality of life of people with a dementia and their carers? A pilot evaluation study’, Dementia,12 (2),pp. 157-176
Ten people with dementia (PWD) and their family carers participated in a Singing Together Group for 10 weeks and measures of mood, quality of life, PWD's behavioural and psychological problems, activities of daily living and cognitive status were measured at pre, post and 10-week follow-up. Read more.
Egdell, V 2013, 'Who cares? Managing obligation and responsibility across the changing landscapes of informal dementia care', Ageing & Society, 33, 5, pp. 888-907
This paper explores the different ways in which informal carers for people with dementia negotiate their care-giving role across the changing organisational and spatial landscape of care. In-depth qualitative data are used to argue that the decisions of carers are socially situated and the result of negotiations involving individuals, families and wider cultural expectations. Read more.
Burns CM, Abernethy AP, Dal Grande E, Currow DC. 2013, ‘Uncovering an invisible network of direct caregivers at the end of life: A population study’, Palliative Medicine, 27(7), pp.608-15
Most palliative care research about caregivers relies on reports from spouses or adult children. Some recent clinical reports have noted the assistance provided by other family members and friends. Read more.
Sandra Downes, (2013) "The Eden Principles in dementia respite care: carers’ experience", Quality in Ageing and Older Adults, Vol. 14 Iss: 2, pp.105-115
The purpose of this paper is to report on outcomes for carers of people with dementia who use the services of Hawthorn House, a day respite centre in rural Western Australia that is based on the Eden Principles. Read more.