Have Your Say...

Have Your Say...

Have Your Say is Carers Victoria’s online hub to raise issues that are important to you in your caring role.

It’s a place where you can participate in surveys and provide feedback on research and matters impacting carers. We encourage you to take part in the opportunities below. Insights and feedback gathered will help build an evidence base for better support for carers, inform policy and decision making, and ultimately deliver better outcomes for the carer community.

Have your say on...

Have your Say on The Carer Gateway

Urbis has been engaged by the Department of Social Services to conduct a research study about how well the Carer Gateway service has been delivered to service users.

If you are a service user of the Carer Gateway, this is your opportunity to give your honest feedback on how you have found the system so far. Your eligibility for Government services and/or payments will not be impacted in any way by any information you share in this study, or by your decision not to participate.

For more information download the flyer here.

Gender Safe and Sensitive Practice in Mental Health Services

The Office of the Chief Psychiatrist is undertaking a codesign process, working with consumers, carers, clinicians and services to design and develop resources that will assist mental health services to be available, accessible, appropriate and safe for all. They are currently looking for consumers, carers, mental health practitioners and representatives from LGBTIQ+, Women's health, CALD and Aboriginal communities to work in partnership to create communication materials, resources and policies for mental health services to provide gender safe and sensitive care. An online information session is taking place on Tuesday 23 February 1pm – 2.30pm.

For more information or to RSVP please contact Frances Sanders frances.sanders@dhhs.vic.gov.au

The Disability Gateway website

The Department of Social Services (DSS) is seeking feedback on the new National Disability Information Gateway pilot website. The Disability Gateway is intended to help people with a disability, their family and carers to access assistance and services relevant to them. You can access the pilot website here and provide your thoughts by clicking on the ‘provide feedback’ button by scrolling down to the end of the home page.

Exploring the impact of coronavirus related closures of social care services on the lives of older adults, people with dementia and family carers

Griffith University is looking for volunteers who can participate in an online survey to explore how COVID-19 related social service closures affect the lives of older people, people with dementia and informal carers in Australia.

The study involves you completing an online survey three times over 12 weeks. The first time you complete the survey will take approximately 45 minutes. You will be asked about your use of social support services, self-isolation and your well-being.

Griffith University is also looking for volunteers to be interviewed about their experiences during COVID-19 lockdown. The aim of this interview is to explore the effects of coronavirus related closures of social care services on the lives of people with dementia and family carers.

Contact Dr Katarzyna Lion (Chief Investigator) on k.lion@griffith.edu.au (07 373 58440) if you are interested in taking part. Detailed information about the research project can be found on the Griffith University website.

Improving hospital discharge for carers and older adults

Carers Victoria and Monash University are seeking carers of older adults living in the community to take part in an interview for a research project. The research project aims to identify carers’ experiences and needs in supporting older adults who are discharged from hospital to home.

The research interview will be via telephone and will take about one hour. To take part, carers will:

  • Be supporting an older adult living in the community with chronic health difficulties, and
  • Have experience with discharge from hospital to home of the older adult that they support

All carers are very welcome including those from diverse cultural backgrounds, diverse sexual orientation, and diverse locations such as rural and regional areas.

Please contact Jacqui Allen on 0427 940 794 or by email Jacqui.allen@monash.edu for more information and details about participating.

Outcomes for children and young people using disability services: A survey for carers

Researchers at Scope, a disability service in Victoria, are testing a survey that explores the impact that services or supports have on children/ young people (aged 0-14 years) with disability.

The researchers are inviting carers of children/ young people (0-14 years of age) with disability across Australia to help them test the survey. Taking part involves carers completing the survey online, which takes about 10 to 15 minutes.

For more information and to complete the survey, click here.

If you would like to talk to someone about the research, please contact Caroline Hart on 0437 840 684 or email CHart@scopeaust.org.au.

Seeking people who have supported individuals living with stroke

Deakin University is seeking your feedback to create a smart home solution to support people living with stroke at their home. Participation includes multiple sessions (online surveys, interviews, observations and three workshops) between 2 April 2020 – 2 April 2021 during which time you will be asked questions regarding your needs and role and introduced to a smart home solution. During the study you will provide feedback to ensure the solution is usable and able to support your needs. Participants will receive a $50 gift voucher for Coles/Woolworths at the end of the study.

If you’ve supported someone living with stroke and would like to provide feedback on the ability of the smart home solution to deliver care and support you as a carer, consider participating in this study. To request more information or to register your interest please contact Associate Professor Mohamed Abdelrazek, School of IT, Deakin University on Mohamed.abdelrazek@deakin.edu.au or phone 0425 665 536.

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Impact of Visitor Restrictions to Residential Aged Care Homes during the COVID-19 Pandemic

Monash University and the Melbourne Ageing Research Collaboration are doing a study on the impact of visitor restrictions to residential aged care homes during the COVID-19 pandemic.

To be eligible to participate in this study, you must be a family member or friend of someone in residential aged care and were affected by visitor restrictions during the Pandemic.

For more information, download the flyer here or email helen.rawson@monash.edu.au

Sleep Quality in People with Dementia

The Florey Institute of Neuroscience and Mental Health and Eastern Health are conducting research to better Circadian Rythms and Quality of Sleep in Alzheimer's dementia (AD) and frontotemporal dementia (FTD). People who have a diagnosis of probable AD or FTD and their partners are invited to take part in this study.

Participation for the person with dementia involves an overnight polysomnography (wearing a non-invasive device while sleeping for one night), wearing a smart device on the wrist for a week, provision of urine samples and some cognitive testing. The person with dementia may also provide a small blood sample and / or undertake an MRI if they are comfortable to do so. Participation for the partner involves keeping a sleep diary (5 minutes of writing per day for 7 days) and completion of a few questionnaires. All travel expenses incurred by participants can be reimbursed by the study.

Please read the participant information sheet and consent form here which provides more detail about participating in the project. Participation is voluntary and does not affect your access to services from Carers Victoria or the Carer Gateway.

If you are interested in taking part or would like more information, please contact: Derek English by phone on (03) 9982 2335 or email derek.english@monash.edu


Residential Tenancies Dispute Resolution Service

Tenants Victoria is conducting a survey around the Residential Tenancies Dispute Resolution Service. If you used the service during the Coronavirus pandemic in 2020, Tenants Victoria would like to know more about your experience and the process you went through.

The survey is now available here

Community Consultation: Housing for Older People from LGBTI Communities

Are you over 50 and part of the LGBTI community?

Housing for the Aged Action Group is a not-for-profit organisation that works with older people to achieve housing justice. They are hosting a virtual and in-person community consultation on 25 February and 3 March 3 2021 and want to hear from all voices of the older LGBTI community. Tell them about your housing, both now and into the future, and what you think people need to know.

Help prevent homelessness for older LGBTI people and share your experiences, concerns and knowledge about housing and homelessness.

Please contact Project Worker, Rebecca Walton to register to attend the community consultation session by emailing Rebecca.walton@oldertenants.org.au or phone (03) 9654 7389.