Have Your Say...

Have Your Say...

Have Your Say is Carers Victoria’s online hub to raise issues that are important to you in your caring role.

It’s a place where you can participate in surveys and provide feedback on research and matters impacting carers. We encourage you to take part in the opportunities below. Insights and feedback gathered will help build an evidence base for better support for carers, inform policy and decision making, and ultimately deliver better outcomes for the carer community.

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The Disability Gateway website

The Department of Social Services (DSS) is seeking feedback on the new National Disability Information Gateway pilot website. The Disability Gateway is intended to help people with a disability, their family and carers to access assistance and services relevant to them. You can access the pilot website here and provide your thoughts by clicking on the ‘provide feedback’ button by scrolling down to the end of the home page.

Exploring the impact of coronavirus related closures of social care services on the lives of older adults, people with dementia and family carers

Griffith University is looking for volunteers who can participate in an online survey to explore how COVID-19 related social service closures affect the lives of older people, people with dementia and informal carers in Australia.

The study involves you completing an online survey three times over 12 weeks. The first time you complete the survey will take approximately 45 minutes. You will be asked about your use of social support services, self-isolation and your well-being.

Griffith University is also looking for volunteers to be interviewed about their experiences during COVID-19 lockdown. The aim of this interview is to explore the effects of coronavirus related closures of social care services on the lives of people with dementia and family carers.

Contact Dr Katarzyna Lion (Chief Investigator) on k.lion@griffith.edu.au (07 373 58440) if you are interested in taking part. Detailed information about the research project can be found on the Griffith University website.

Improving hospital discharge for carers and older adults

Carers Victoria and Monash University are seeking carers of older adults living in the community to take part in an interview for a research project. The research project aims to identify carers’ experiences and needs in supporting older adults who are discharged from hospital to home.

The research interview will be via telephone and will take about one hour. To take part, carers will:

  • Be supporting an older adult living in the community with chronic health difficulties, and
  • Have experience with discharge from hospital to home of the older adult that they support

All carers are very welcome including those from diverse cultural backgrounds, diverse sexual orientation, and diverse locations such as rural and regional areas.

Please contact Jacqui Allen on 0427 940 794 or by email Jacqui.allen@monash.edu for more information and details about participating.

Outcomes for children and young people using disability services: A survey for carers

Researchers at Scope, a disability service in Victoria, are testing a survey that explores the impact that services or supports have on children/ young people (aged 0-14 years) with disability.

The researchers are inviting carers of children/ young people (0-14 years of age) with disability across Australia to help them test the survey. Taking part involves carers completing the survey online, which takes about 10 to 15 minutes.

For more information and to complete the survey, click here.

If you would like to talk to someone about the research, please contact Caroline Hart on 0437 840 684 or email CHart@scopeaust.org.au.

Seeking people who have supported individuals living with stroke

Deakin University is seeking your feedback to create a smart home solution to support people living with stroke at their home. Participation includes multiple sessions (online surveys, interviews, observations and three workshops) between 2 April 2020 – 2 April 2021 during which time you will be asked questions regarding your needs and role and introduced to a smart home solution. During the study you will provide feedback to ensure the solution is usable and able to support your needs. Participants will receive a $50 gift voucher for Coles/Woolworths at the end of the study.

If you’ve supported someone living with stroke and would like to provide feedback on the ability of the smart home solution to deliver care and support you as a carer, consider participating in this study. To request more information or to register your interest please contact Associate Professor Mohamed Abdelrazek, School of IT, Deakin University on Mohamed.abdelrazek@deakin.edu.au or phone 0425 665 536.

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