Have Your Say...

Have Your Say...

Have Your Say is Carers Victoria’s online hub to raise issues that are important to you in your caring role.

It’s a place where you can participate in surveys and provide feedback on research and matters impacting carers. We encourage you to take part in the opportunities below. Insights and feedback gathered will help build an evidence base for better support for carers, inform policy and decision making, and ultimately deliver better outcomes for the carer community.

Have your say on...

Loss, Coping and Meaning Making: Experiences of People Caring for a Partner with Younger Onset Dementia

Deakin University is inviting carers of a partner with young onset dementia to take part in a research study. The purpose of the research is to explore the lived experiences of carers including how they experience grief and loss, the ways in which they cope, and the meaning they make from their experiences. To complete the survey, click here.

Co-Design to Support Health and Wellbeing of Older Carers

Carers Victoria and the Monash University Rehabilitation, Ageing and Independent Living (RAIL) research centre is conducting a project on the health and wellbeing of carers. We are seeking carers aged 50 and above who care for older people (aged 65 years or above) to complete a survey about your needs relating to health, wellbeing, health promotion and support services.

Your opinion will help us better understand the information and support services used by carers of older people and help co-design a new service to support the health of carers of older people in Australia. The aim of the project is to implement a flexible, innovative, easy to access service for carers which will improve wellbeing and help them sustain their carer role in the longer term.

The survey will take approximately 30 minutes. Click here to take part. 

To learn more about the project, watch this video.

Evaluation of film and digital media to raise dementia awareness

Researchers at Curtin University and National Ageing Research Institute are seeking people from Vietnamese and Spanish speaking backgrounds aged 18 years or over to evaluate three short films aimed at raising dementia awareness online. They need your input to ensure the films are relevant and meet the needs of the community. The evaluation should take no more than 30 minutes and participants will go in the draw to win 1 of 4 $50 gift cards.

View the films here.

To complete the evaluation, please click on the relevant link below:

Estimating the value of informal care provided to people with dementia in Australia

Deakin University, in collaboration with Carers Victoria, are conducting a study that aims to estimate the monetary value of the time spent providing informal care to a person with dementia. All carers who provide regular, unpaid support to a person living with dementia are invited to complete an online survey, which asks questions about your opinion of different caring situations.

To complete the survey click here.

To find out more about the study click here.

Improving hospital discharge for carers and older adults

Carers Victoria and Monash University are seeking carers of older adults living in the community to take part in an interview for a research project. The research project aims to identify carers’ experiences and needs in supporting older adults who are discharged from hospital to home.

The research interview will be via telephone and will take about one hour. To take part, carers will:

  • Be supporting an older adult living in the community with chronic health difficulties, and
  • Have experience with discharge from hospital to home of the older adult that they support

All carers are very welcome including those from diverse cultural backgrounds, diverse sexual orientation, and diverse locations such as rural and regional areas.

Please contact Jacqui Allen on 0427 940 794 or by email Jacqui.allen@monash.edu for more information and details about participating.