Have Your Say...

Have Your Say...

Have Your Say is Carers Victoria’s online hub to raise issues that are important to you in your caring role.

It’s a place where you can participate in surveys and provide feedback on research and matters impacting carers. We encourage you to take part in the opportunities below. Insights and feedback gathered will help build an evidence base for better support for carers, inform policy and decision making, and ultimately deliver better outcomes for the carer community.

Have your say on...

Estimating the value of informal care provided to people with dementia in Australia

Deakin University, in collaboration with Carers Victoria, are conducting a study that aims to estimate the monetary value of the time spent providing informal care to a person with dementia. All carers who provide regular, unpaid support to a person living with dementia are invited to complete an online survey, which asks questions about your opinion of different caring situations.

To complete the survey click here.

To find out more about the study click here.

Improving hospital discharge for carers and older adults

Carers Victoria and Monash University are seeking carers of older adults living in the community to take part in an interview for a research project. The research project aims to identify carers’ experiences and needs in supporting older adults who are discharged from hospital to home.

The research interview will be via telephone and will take about one hour. To take part, carers will:

  • Be supporting an older adult living in the community with chronic health difficulties, and
  • Have experience with discharge from hospital to home of the older adult that they support

All carers are very welcome including those from diverse cultural backgrounds, diverse sexual orientation, and diverse locations such as rural and regional areas.

Please contact Jacqui Allen on 0427 940 794 or by email Jacqui.allen@monash.edu for more information and details about participating.

Impact of Visitor Restrictions to Residential Aged Care Homes during the COVID-19 Pandemic

Monash University and the Melbourne Ageing Research Collaboration are doing a study on the impact of visitor restrictions to residential aged care homes during the COVID-19 pandemic.

To be eligible to participate in this study, you must be a family member or friend of someone in residential aged care and were affected by visitor restrictions during the Pandemic.

For more information, download the flyer here or email helen.rawson@monash.edu.au

Sleep Quality in People with Dementia

The Florey Institute of Neuroscience and Mental Health and Eastern Health are conducting research to better Circadian Rythms and Quality of Sleep in Alzheimer's dementia (AD) and frontotemporal dementia (FTD). People who have a diagnosis of probable AD or FTD and their partners are invited to take part in this study.

Participation for the person with dementia involves an overnight polysomnography (wearing a non-invasive device while sleeping for one night), wearing a smart device on the wrist for a week, provision of urine samples and some cognitive testing. The person with dementia may also provide a small blood sample and / or undertake an MRI if they are comfortable to do so. Participation for the partner involves keeping a sleep diary (5 minutes of writing per day for 7 days) and completion of a few questionnaires. All travel expenses incurred by participants can be reimbursed by the study.

Please read the participant information sheet and consent form here which provides more detail about participating in the project. Participation is voluntary and does not affect your access to services from Carers Victoria or the Carer Gateway.

If you are interested in taking part or would like more information, please contact: Derek English by phone on (03) 9982 2335 or email derek.english@monash.edu