This year Adriana found herself becoming a mum again to a beautiful baby girl. She was born 14 weeks premature at 26.5 weeks, weighing just 504 grams. Today marks Day 80 of her hospital stay. She is now 38 weeks and 5 days old, weighing in at 2.45 kilos and has been diagnosed with chronic lung disease.
Adriana is the mother of four other children, and the primary carer along with her husband for her two oldest daughters, aged 12 and 9 years, who have their own complex health issues.
On top of early daily visits to the hospital, the family is also contending with the trials of home schooling. Each home schooling day starts with the ring of the school bell after school uniforms are on, and bags and lunches packed. Sticking to a timetable, setting priorities, and establishing daily routines have helped. It is hard, but Adriana consistently reinforces the message that “we will get through this together”.
Adriana is managing these tough times by reminding family members to be considerate of each other, and making adjustments when needed to keep everyone safe and happy. The family now enjoy new routines such as a nightly walk together, where they notice the falling autumn leaves, the changes in the light and just being together.
Communication has been key; with the school, with the children and with other parents. Adriana says that developing strong, deep connections is important. She also has a new admiration for her children’s teachers!
Adriana’s advice to other carers is to take your children as they are, to take each day as it comes, and be ready to adapt and adjust.