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Have Your Say is Carers Victoria’s online hub to raise issues that are important to you in your caring role.
It’s a place where you can participate in surveys and provide feedback on research and matters impacting carers. We encourage you to take part in the opportunities below. Insights and feedback gathered will help build an evidence base for better support for carers, inform policy and decision making, and ultimately deliver better outcomes for the carer community.
Have your say on...
Exploring the impact of COVID-19 on the psychological wellbeing of carers of people living in aged care facilities
Are you a carer of a person in a residential aged care facility in Australia? Are you over the age of 18?
Researchers at Federation University are investigating the experiences of informal caregivers amid restricted access to their care recipient in a residential aged care facility. They are particularly interested in understanding how these restrictions have affected your wellbeing as a carer.
If you agree to participate in this study, you will be required to attend an online interview to be held at a mutually agreed time. The interview is expected to last between 45 and 60 minutes via Zoom or any online platform.
If you have any questions or would like to express your interest in participating, please email Dr Bindu Joseph: b.joseph@federation.edu.au
Invitation to participate in a survey for a research project about improving hospital discharge for carers and older adults
Carers Victoria and Monash University are seeking carers of older adults living in the community to take part in a survey. This project aims to identify carers’ experiences and needs in supporting older adults who are discharged from hospital to home.
To be eligible, carers must:
- Be supporting an older adult living in the community with chronic health difficulties; and
- Have experience with discharge from hospital to home following admission for a physical health problem of the older adult that they support at any time after 1 January 2020.
All carers are welcome to take part including those from diverse cultural backgrounds, diverse sexual orientation, and diverse locations such as rural and regional areas.
The survey will take approximately 25 minutes to complete. Click here to complete it.
For more information, or if you prefer a hardcopy of the survey, please email Jacqui Allen at Jacqui.allen@monash.edu or phone 0427 940 794.
CARE Study: Experience of caregivers and siblings of people who have experienced mania or psychosis
Researchers at Orygen Youth Health are conducting a research study called “CARE” to improve understanding of the experience of caregivers and siblings of people who have experienced mania or psychosis.
CARE researchers are currently recruiting primary caregivers to an individual who has experienced mania or psychosis. They are also looking for siblings of people who have experienced mania or psychosis. The sibling relationship can be biological, step, foster, or adoptive in nature. All participants in this study must live in Australia and be 18 years or older.
Eligible participants will be a given a link to an online survey which will take approximately 60-90 minutes to complete. Upon completion, participants will enter a draw to win one of five $200 gift vouchers.
Here’s an example of how your voice can be heard
Ahead of National Carers Week 2021, we asked carers what they would like to ask Parliamentary Secretary for Carers and Volunteers Mr Anthony Carbines. We put these questions directly to the Parliamentary Secretary at our launch of National Carers Week.