VOICE - Get Involved

Study: Co-designing a novel service to support health and wellbeing of older carers of older people

Carers Victoria and the Monash University Rehabilitation, Ageing and Independent Living (RAIL) research centre’s “Who cares for the carers” Living Labs Project is conducting a project on the health and wellbeing of older carers.

The study will integrate data from multiple sources, including the Mornington Peninsula, wider Victoria, Western AUSTRALIA and a unique Carers’ Clinic in Brazil, to inform development of a novel carers’ health service model suitable for the Australian context.

We are seeking carers aged 50 and above who care for older people (aged 65 years or above) to complete a survey about your needs relating to health, wellbeing, health promotion and support services. The survey will take approximately 30 minutes to complete. You can complete it here.

For further information or to receive a paper-based survey please contact Dr Angel Lee (project manager) on (03) 9904 4662 or email angel.lee@moansh.edu


Vote for Carers Victoria

Carers Victoria has been shortlisted as one of six charities to potentially receive a share of profits from the Live Your Potential NDIS Expo 2021. Of the six, three will be chosen.

The Expo is a free day out for participants, carers and family to meet NDIS providers and join in some fun inclusive activities. Organisers of the Expo will donate all profits to charity organisations doing amazing work within the NDIS sector.

Click here to cast your vote by Tuesday 31 August.


Digital Resources for Parents and Carers of Children

Planet Puberty is a digital resource suite by Family Planning NSW that aims to provide parents and carers of children with intellectual disability and/or autism spectrum disorder with the latest information, strategies and resources for supporting their child through puberty. 

Planet Puberty was co-designed with adults with intellectual disability and autism spectrum disorder across Australia. The website was funded by the Australian Government Department of Social Services and Carers Victoria was part of the stakeholder advisory group.

Find out more here


Study: Carers supporting people living with stroke

Deakin University and the University of Copenhagen are conducting a study on the needs of carers supporting someone who has had a stroke. The data will be collected to develop strategies that researchers, medical professionals and engineers can use to develop the best methods to support carers in this role.

Carers over the age of 18 who are caring for someone living with stroke are asked to complete an online survey. You will receive a $50 voucher for your time.

For more information or to register your interest, click here or contact A/Prof Mohamed Abdelrazek via email mohamed.abdelrazek@deakin.edu.au or phone 0425 665 536 .


Study: An exploration of values associated with caregiving for older family members

The University of Southern Queensland (USQ) is conducting a study investigating the values associated with caregiving for older family members. If you are caring for a family member who is older, the researchers would like to hear from you.

Your participation will involve an interview over Zoom that will take approximately 50 minutes. The interview will take place at a time and date that is convenient to you.

For further information please contact Siobhan via email Siobhan.Melvin@usq.edu.au

Carer Wellbeing and Connection - Now Taking Expressions of Interest 

We know that people who provide care for a loved one often experience loneliness and can feel isolated. COVID-19 restrictions have only made it more complicated and difficult. If this sounds familiar, the Carer Wellbeing and Connection program may be right for you. We are now taking registrations for June 2021.

Learn More


Mind the Step – Dates for May Now Available

Are you caring for a friend or family member?

Are you feeling uncertain, stressed or anxious?

Do you want to feel more connected?

Let’s talk.

Carers Victoria is delivering Mind the Step, a FREE four-week online program for carers who feel they would benefit from building their personal resilience and connecting with others in similar situations. The program is facilitated by qualified counsellors via Zoom for 90 minutes each week to support carers in Western Victoria.  Participant numbers are kept small to provide a safe and supportive environment.

If you’d like to enrich your mental health and wellbeing, build awareness or resources and support services and feel more empowered as a carer, register your interest for Mind the Step. The program is for anyone living in Western Victoria who is in a caring role.

We are now taking expressions of interest for May intake. To learn more about the program click here


Improving Hospital Discharge for Carers and Older Adults

Monash University is seeking carers of older adults living in the community to take part in an interview for a research project. The research project aims to identify carers’ experiences and needs in supporting older adults who are discharged from hospital to home. The research interview will take place by telephone and it will take about one hour. To take part, carers will:

  • Be supporting an older adult living in the community with chronic health difficulties, and;
  • Have experience with discharge from hospital to home following admission for a physical health problem of the older adult that they support.

All carers are very welcome including those from diverse locations such as rural and regional areas, diverse cultural backgrounds, and diverse sexual orientation. Carers who have recently supported an older adult (within the past 12 months) are also eligible.

Please contact Jacqui Allen on 0427 940 794 or by email Jacqui.allen@monash.edu for more information and details about participating.

State Disability Plan

The State Disability Plan sets out the Government's priorities and actions over the next five years to create a more inclusive and accessible Victoria. Consultation for the next plan (2021-25) has begun again after being paused due to the COVID-19 pandemic.

Forums will cover important issues impacting on the lives of people with disability. The Minister for Disability, Ageing and Carers, Luke Donnellan will attend the first session on March 31 alongside members of the Victorian Disability Advisory Council. There will also be a dedicated forum for people from rural and regional communities.

The Andrews Labor Government is also currently reviewing the Disability Act (2006). Feedback is wanted from the community to make sure the law continues to protect the rights of people with disability, supports their needs and aspirations, promotes and protects rights, and advances inclusion and participation.

Carers Victoria is a member of the Disability Act Review Advisory Group and encourages all carers to contribute their own ideas about improving the Disability Act and/or the State Disability Plan to better recognise and support carers and care relationships.

Carers Victoria’s own submission made the primary recommendation that any State Disability Plan should recognise that over 30 % of carers have a disability themselves and therefore, more alignment between the State Disability Plan and the Victorian Carer Strategy is required. You can read the submission here.

For more information on these forums or to register to attend, click here or call the Office for Disability on 1300 880 043.


Game-Based Cognitive Training for Children with ADHD

The ATICA Project team at Monash University are investigating the efficacy of a game-based cognitive training program in improving attention in children aged 5-8 years who have a diagnosis of Attention-Deficit/Hyperactivity Disorder (ADHD). Children with ADHD will trial the computerised cognitive training program in their home. Families will be provided a tablet containing the cognitive training program for the duration of the study.

Participants are required to attend in-person assessment session, pre-training, post-training and for a 6-month follow up. Training at home will involve 5 x 20-minute training sessions weekly for five weeks.

Participants will be given a report of their abilities on each of the assessment measures including a cognitive assessment, and receive gift vouchers for their time.

For further information about this research please contact Tori Gaunson or Meg Bennett on (03) 9905 5507 or Med.atica@monash.edu

Q&A Sessions: NDIS and ECEI

The Brotherhood of St. Laurence (BSL) NDIS is inviting people with disability, family members and carers to join their fortnightly Facebook Q&A sessions.

Every Thursday fortnight at 2pm you will have the opportunity to ask your questions direct to a Local Area Coordinator (LAC) or Early Childhood Early Intervention (ECEI) Coordinator from BSL who will be online and ready to respond.  

Sessions include a general NDIS Q&A, as well as dedicated ECEI sessions for individuals and families who have children aged 0–6 years with delays in their development or a disability.

Whether you’re new to the Scheme, have an NDIS plan, or want to know more about BSL NDIS Services, the Facebook Q&A is the place to get answers to your questions.

Upcoming Sessions:

Thursday 11 March (ECEI session)
Thursday 25 March

To find out more click here.  


Social and Affordable Housing Strategy

The Victorian Government is developing a 10-year strategy for social and affordable housing in Victoria. Carers are encouraged to share their views about affordable social housing for themselves, as well as for the people they care for. 

The Government is inviting you or your organisation to have your say by:

  • Responding to an online survey; or
  • Making a written submission.


Homes Victoria will also be speaking with social housing residents and sector partners during this consultation process.

To share your experience, visit the Engage Victoria website.  


Impact of Visitor Restrictions to Residential Aged Care Homes during the COVID-19 Pandemic

Monash University and the Melbourne Ageing Research Collaboration are doing a study on the impact of visitor restrictions to residential aged care homes during the COVID-19 pandemic.

To be eligible to participate in this study, you must be a family member or friend of someone in residential aged care and were affected by visitor restrictions during the Pandemic.

For more information, download the flyer here or email helen.rawson@monash.edu.au

Outcomes for Children and Young People Using Disability Services

Researchers at Scope are inviting carers of children and young people (0-14 years) with disability to complete an online survey that explores the impact of disability services or supports. The survey takes about 10 minutes and is anonymous and confidential.

Ensuring carers are heard in this research is very important to the researchers. The survey is available online here.

To find out more phone Caroline Hart on 0437 840 684 or email CHart@scopeaust.org.au


Reforms to foster an open and honest culture in health services

The Victorian Government will introduce a duty of candour law in 2021 and seeks your comments on related reforms.

The reforms have the potential to impact everyone who interacts with health services, consumers and clinicians. So, it is important that everyone has the opportunity to contribute meaningfully to their detailed design.

Under the duty of candour law, hospitals will have an obligation to:

  • Apologise to any person seriously harmed while receiving care;
  • Explain what went wrong;
  • Describe what action will be taken and what improvements will be put in place.

Saying sorry will not be an admission of fault relevant to court determinations.

The law will be the first of its kind in Australia.

Read more

The Victorian Government is seeking your feedback to Victorian candour and open disclosure guidelines and proposed model for clinical incident review protections. You can provide feedback by:

  • Responding to some or all the questions in a survey;
  • Uploading a submission document based on the survey questions.

Find out more and have your say here.


Sleep Quality in People with Dementia

The Florey Institute of Neuroscience and Mental Health and Eastern Health are conducting research to better Circadian Rythms and Quality of Sleep in Alzheimer's dementia (AD) and frontotemporal dementia (FTD). People who have a diagnosis of probable AD or FTD and their partners are invited to take part in this study.

Participation for the person with dementia involves an overnight polysomnography (wearing a non-invasive device while sleeping for one night), wearing a smart device on the wrist for a week, provision of urine samples and some cognitive testing. The person with dementia may also provide a small blood sample and / or undertake an MRI if they are comfortable to do so. Participation for the partner involves keeping a sleep diary (5 minutes of writing per day for 7 days) and completion of a few questionnaires.

Read more

All travel expenses incurred by participants can be reimbursed by the study.

Please read the participant information sheet and consent form here which provides more detail about participating in the project. Participation is voluntary and does not affect your access to services from Carers Victoria or the Carer Gateway.
 
If you are interested in taking part or would like more information, please contact Derek English by phone on (03) 9982 2335 or email 
derek.english@monash.edu