VOICE - Get Involved

Q&A Sessions: NDIS and ECEI

The Brotherhood of St. Laurence (BSL) NDIS is inviting people with disability, family members and carers to join their fortnightly Facebook Q&A sessions.

Every Thursday fortnight at 2pm you will have the opportunity to ask your questions direct to a Local Area Coordinator (LAC) or Early Childhood Early Intervention (ECEI) Coordinator from BSL who will be online and ready to respond.  

Sessions include a general NDIS Q&A, as well as dedicated ECEI sessions for individuals and families who have children aged 0–6 years with delays in their development or a disability.

Whether you’re new to the Scheme, have an NDIS plan, or want to know more about BSL NDIS Services, the Facebook Q&A is the place to get answers to your questions.

Upcoming Sessions:

Thursday 11 March (ECEI session)
Thursday 25 March

To find out more click here.  


Social and Affordable Housing Strategy

The Victorian Government is developing a 10-year strategy for social and affordable housing in Victoria. Carers are encouraged to share their views about affordable social housing for themselves, as well as for the people they care for. 

The Government is inviting you or your organisation to have your say by:

  • Responding to an online survey; or
  • Making a written submission.


Homes Victoria will also be speaking with social housing residents and sector partners during this consultation process.

To share your experience, visit the Engage Victoria website.  


Impact of Visitor Restrictions to Residential Aged Care Homes during the COVID-19 Pandemic

Monash University and the Melbourne Ageing Research Collaboration are doing a study on the impact of visitor restrictions to residential aged care homes during the COVID-19 pandemic.

To be eligible to participate in this study, you must be a family member or friend of someone in residential aged care and were affected by visitor restrictions during the Pandemic.

For more information, download the flyer here or email helen.rawson@monash.edu.au


Improving Hospital Discharge for Carers and Older Adults

Monash University is seeking carers of older adults living in the community to take part in an interview for a research project. The research project aims to identify carers’ experiences and needs in supporting older adults who are discharged from hospital to home. The research interview will take place by telephone and it will take about one hour. To take part, carers will:

  • Be supporting an older adult living in the community with chronic health difficulties, and;
  • Have experience with discharge from hospital to home following admission for a physical health problem of the older adult that they support.

All carers are very welcome including those from diverse locations such as rural and regional areas, diverse cultural backgrounds, and diverse sexual orientation. Carers who have recently supported an older adult (within the past 12 months) are also eligible.

Please contact Jacqui Allen on 0427 940 794 or by email Jacqui.allen@monash.edu for more information and details about participating.

Outcomes for Children and Young People Using Disability Services

Researchers at Scope are inviting carers of children and young people (0-14 years) with disability to complete an online survey that explores the impact of disability services or supports. The survey takes about 10 minutes and is anonymous and confidential.

Ensuring carers are heard in this research is very important to the researchers. The survey is available online here.

To find out more phone Caroline Hart on 0437 840 684 or email CHart@scopeaust.org.au


Reforms to foster an open and honest culture in health services

The Victorian Government will introduce a duty of candour law in 2021 and seeks your comments on related reforms.

The reforms have the potential to impact everyone who interacts with health services, consumers and clinicians. So, it is important that everyone has the opportunity to contribute meaningfully to their detailed design.

Under the duty of candour law, hospitals will have an obligation to:

  • Apologise to any person seriously harmed while receiving care;
  • Explain what went wrong;
  • Describe what action will be taken and what improvements will be put in place.

Saying sorry will not be an admission of fault relevant to court determinations.

The law will be the first of its kind in Australia.

Read more

The Victorian Government is seeking your feedback to Victorian candour and open disclosure guidelines and proposed model for clinical incident review protections. You can provide feedback by:

  • Responding to some or all the questions in a survey;
  • Uploading a submission document based on the survey questions.

Find out more and have your say here.


Sleep Quality in People with Dementia

The Florey Institute of Neuroscience and Mental Health and Eastern Health are conducting research to better Circadian Rythms and Quality of Sleep in Alzheimer's dementia (AD) and frontotemporal dementia (FTD). People who have a diagnosis of probable AD or FTD and their partners are invited to take part in this study.

Participation for the person with dementia involves an overnight polysomnography (wearing a non-invasive device while sleeping for one night), wearing a smart device on the wrist for a week, provision of urine samples and some cognitive testing. The person with dementia may also provide a small blood sample and / or undertake an MRI if they are comfortable to do so. Participation for the partner involves keeping a sleep diary (5 minutes of writing per day for 7 days) and completion of a few questionnaires.

Read more

All travel expenses incurred by participants can be reimbursed by the study.

Please read the participant information sheet and consent form here which provides more detail about participating in the project. Participation is voluntary and does not affect your access to services from Carers Victoria or the Carer Gateway.
 
If you are interested in taking part or would like more information, please contact Derek English by phone on (03) 9982 2335 or email 
derek.english@monash.edu