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Faye’s story - What happens to the carer when caring ends?

For years - sometimes decades - a carer gives their heart, time, and energy to someone they love. Their days are shaped by another person’s needs: comfort, safety, dignity, and companionship. Life becomes a pattern of appointments, medications, quiet routines, and constant attention. It is a life lived for someone else, grounded in love and responsibility.

Then, one day, that person is gone.

They have lived their life and moved on, leaving behind a silence that fills every room. The carer’s purpose - so long the centre of their world - disappears. The phone stops ringing. The stream of visitors and support workers fades. Letters arrive offering condolences, and others advise that funding and support services will cease. Those services, though designed for the person they cared for, were in many ways a support system for the carer as well.

 

And so, the carer finds herself adrift. Her job is finished. She is older now—perhaps wiser—but with a deep hollow in her life that is hard to fill. Her days, once so full, stretch out quietly. There are no routines, no one to care for, and often, no one who understands the depth of what she has lost.

She asks herself, ‘Who am I now?’

For so long, her identity was defined by caring. The purpose that gave structure and meaning to each day has vanished. Without it, loneliness takes hold. She may try to find new interests or friendships, but after years of putting her own needs aside, it can feel daunting to begin again.

In the stillness, she starts to notice her own health issues, long ignored while caring for another. The support she built for her loved one must now be rebuilt for herself - but that takes courage, and time, and often feels overwhelming.

When caring ends, a carer faces not just grief, but a loss of identity. It is a profound transition, and one that deserves recognition and understanding.

Yet, within that loss lies the possibility of renewal.

When caring ends, it does not mean the carer’s story is over.

It is the beginning of a new chapter - one where the love and compassion once given to another can be used to rebuild, to heal, and to live again, and life in hope that she will find the care she needs. 

Faye is a Nurse Educator, full-time carer for her husband with Parkinson’s for 25 years, and community advocate.

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