Carers Victoria join advocacy campaign
for carers in mental health

In early 2026, the Entities Legislation Amendment (Consolidation and Other Matters) Bill was debated in the Victorian Legislative Council. The Bill would impact carers in mental health (those caring for someone with mental health issues), making changes to lived experience representation and leadership in Victoria’s mental health system.

Many carers and sector organisations, including Carers Victoria, were concerned that the Bill would weaken lived experience leadership and oversight in the mental health and wellbeing system, rolling back hard-won reforms from the Royal Commission into Victoria’s Mental Health System.

In this article, learn about:

  • Stats on carers in mental health
  • Impact of the original Bill
  • The advocacy campaign
  • The debate in Parliament
  • Outcome of the advocacy campaign

Carers in mental health

There are 750,000+ unpaid carers in Victoria. According to Tandem, peak body for carers in mental health, 69,000 of these are carers supporting a person with mental health challenges. Many of these carers have said they feel devastated and repeatedly let down by the mental health and wellbeing system, and now they were about to face another let down.

Impact of the original Bill

The proposed Bill included changes that were not in the carers interest.

These included:

  • removal of the Carer and Consumer Co -Commissioner model at the Mental Health Wellbeing Commission (MHWC) to a single Commissioner model
  • reducing the size of the Victorian Collaborative Centre for Mental Health and Wellbeing (VCCMHW) Board from 10 (with a minimum of nine members) to a minimum of five members - a chair and four members
  • removing the current Act’s requirement for the VCCMHW to include board members with lived experience (currently two consumers and two carers).

Carer organisations needed to move swiftly to advocate for carers.

The advocacy campaign

Carers Victoria (CV) has consistently called for greater recognition and inclusion of carer-lived experience in decision-making and oversight bodies. Through submissions and input to Commonwealth and Victorian Government inquiries and strategies, CV pointed to the nation-leading arrangements in place in Victoria’s mental health system as an excellent example for other jurisdictions to follow. It was crucial that this representation was not diminished through amendments being considered by Parliament.

Uniting with Tandem, peak body for carers in mental health, and other sector partners, CV called for carers to add their voice. CV also included a link to Tandem’s online campaign in communications to carers, such as the Carers Victoria eNewsletter. As a result of the widespread campaign, more than 2,500 people sent emails to decision-makers via Tandem’s online campaign to express their concern.

As with all advocacy for unpaid carers, Carers Victoria CEO Judith Abbott said, “One of our biggest strengths is just how many carers there are across Victoria – and the more of us that can lift our voices, the more influential we become.”

The debate in Parliament

As the Bill was debated in the Legislative Council (or Upper House), the Minister for Mental Health, the Hon. Minister Ingrid Stitt MP, said:

“Carers are a central voice in the governance of Victoria’s mental health sector, and I, as Minister, and my department will continue to work closely with Tandem, the peak body for carers in mental health, to ensure that the sometimes-unique perspective of carers continues to be reflected in our reforms and our decision-making.

“The government amendments, as we have touched on, will provide for lived experience for one of the Commissioners and also the make-up of the Collaborative Centre Board.”

Outcome of the advocacy campaign

Following this campaign, important amendments to the Bill were made.

These included:

  • restoring lived experience requirements on the Collaborative Centre Board
  • ensuring that either the Commissioner or Deputy Commissioner has lived experience (either as a consumer or as a family member, carer or supporter)
  • The Commission’s oversight role was also protected.

Not everything was retained.

  • The Collaborative Centre Board will be smaller than before.
  • The lived experience Co-CEO requirement wasn’t reinstated.
  • There’s also no guarantee of a Commissioner with family carer lived experience.

Tandem said, “It’s a mixed outcome, but one that shows the power of collective action”.

You can read Tandem’s full explainer to understand what changed, what didn’t, and why it matters, here

Read Tandem’s plain language explainer of the changes brought about by the Entities Legislation Amendment (Consolidation and Other Matters) Bill 2025 and the role that our collective advocacy played in shaping the outcome, here

Carers Victoria, peak body for carers

Carers Victoria is the peak body representing unpaid carers across the state, including carers in mental health. We advocate for better recognition, resources and support, working directly with carers, and partnering with government and community organisations. Our aim is to improve the lives of carers, the people they care for, and their families.

Carers Victoria supports carers with advice, information, education and advocacy

The Statewide Carer Advisory Service is designed to give carers quick, clear, expert information, advice, and helps them link to assistance.

Subscribe to The Voice
Sign up to our e-newsletter.

Get in touch with our Carer Advisory Service

Free, personalised support is just a phone call away.
Find out more
The image shows the Aboriginal flag, with a horizontal black stripe on top, a red stripe on the bottom, and a yellow circle in the center.The image is of the Torres Strait Islander flag, featuring green horizontal stripes at the top and bottom, a blue field with a white Dhari (headdress) in the center, and a white star beneath the Dhari.
Carers Victoria acknowledges the Traditional Owners of the land on which our offices are located, the Wurundjeri peoples of the Kulin Nation, and pay our respect to Elders past and present. We acknowledge the continuing connection to land and waters. Sovereignty was never ceded.