It’s a place where you can participate in surveys and provide feedback on research and matters impacting carers. We encourage you to take part in the opportunities below. Insights and feedback gathered will help build an evidence base for better support for carers, inform policy and decision making, and ultimately deliver better outcomes for the carer community.
Have your say on the following:
The NARI and Austin Health 3C Respite Program team is inviting you to complete an online survey.
Survey closes 30 June 26
To provide you with some context, the 3C Program aimed to help make the transition to respite care easier and better for carers like you, respite recipients and respite care staff. The 3C Program involved a nurse and a researcher visiting a participating respite recipient and their carer prior to their respite stay. The team completed a suite of health assessments with the respite recipient and their carer. We also produced a short video with them which we termed a “3C video vignette”.
The video vignette was a short video that aimed to highlight aspects of the respite recipient’s personality, what they like to do, and who they are as a person. At the in-person visit we recorded a short interview with the respite recipient and carer where we ask them what they think are “important things for respite care staff to know” about the respite recipient. The vignette also aimed to highlight aspects of the respite recipient’s physical and day-to-day function. This included showing how they get around and showing tasks they may be good at or have trouble with.
We are asking you to participate in a survey that will help us evaluate the acceptability of using videos like these as a method of communicating important information about a respite recipient during the transition into respite care.
Your input as someone who has lived experience caring for an older adult who may utilise respite care is highly valued.
Please see the flyer for information on how to participate HERE
Monash University is seeking carers of older adults and older adults living in the community who identify as Italian-Australian to participate in an interview for a research project. Please note: There will be gift vouchers for those selected to participate to the value of $50.
The project aims to develop and evaluate multimedia resources for culturally diverse carers from an Italian-Australian background about better hospital discharge for carers and older adults from hospital to home.
The multimedia resources have been developed and can be accessed through the provided link or QR code. (scroll down the page to click on the link to the Italian resources)
You are invited to review the multimedia resources and participate in an interview. To take part, carers must meet the following criteria:
To take part, older adults must meet the following criteria:
Please contact Jacqui Allen on 0427940794 or by email for more information and details about participating.
Monash University is conducting a research project to better understand what events and experiences lead a person to move to residential aged care. This information will be used to help test how well government policies support older Australians live at home longer.
The research team would like to invite you to participate in an interview to understand [the journey of the person you care for / your family member’s journey through the aged care system].
The Interview will be 30-60 minutes and can be completed via telephone, online or face-to-face (if living in Melbourne) by yourself or with your family member. You will receive a $50 gift card for your time.
You can participate if [the person you care for / your family member] are:
Register for an interview
If you are interested in participating, please fill out the Expression of Interest Form or contact Anna Gillard (anna.gillard@monash.edu; ph.: 03 9904 4714).
A member of the research team will be in touch to confirm a date and time with you, provide you with more information about participation, and answer any questions you may have.
This project (ID# 50195) has been reviewed by the Monash University Human Research Ethics Committee.
Are you a survivor of stroke, or a family member or carer of someone who is? This Monash University project aims to understand the sleep difficulties experienced by survivors of stroke and their informal carers, and how these difficulties impact on their wellbeing, including quality of life, fatigue, stress, and daily functioning.
You will complete a survey (20-mins) that will ask you questions about your daily activities, wellbeing, health and sleep. You can also go in the draw to receive one of 6x $100 gift cards!
Register at https://redcap.link/rest_survey or email us at psych.rest@monash.edu for more information.
As part of its 2025–26 Budget commitments, the Government announced a major investment to close gaps in mental health support, including funding for a new national network of 20 Youth Specialist Care Centres. These centres are being designed to provide ongoing, intensive, community-based care for young people with complex mental health needs, such as personality disorders, eating disorders or early psychosis, who need more support than standard services can offer.
Orygen has been engaged to develop the model of care for these new services. To help us do this, we’re seeking young people aged 18–25 and families, carers and supporters with experience navigating and/or using youth mental health services for complex needs. Their perspectives will be essential in shaping how these services should work.
Participants will be paid for their time and will take part in one workshop and one online feedback session between March and June 2026.
All session details, including pay, are outlined in the Information PDF.
To register your expression of interest, fill out the Expression of Interest Form.
Are you a carer, care partner or supporter of an LGBTQ+ person living with dementia?
If so, you’re invited to share your experiences!
Dr Louisa Smith from Deakin University is leading a research project to improve care for LGBTQ+ people living with dementia.
Participation involves a two-hour online or in-person interview, with art materials provided to help share your story. A $100 gift voucher will be given as thanks.
To learn more, email louisa.smith@deakin.edu.au or sue.taylor@deakin.edu.au
About the study
Researchers from UNSW Sydney, the University of Melbourne and Deakin University, in partnership with Carers Vic, are conducting a major three-year research study to improve understanding of transitions and pathways out of caring.
If you have had thoughts about how your caring may end in the future or are currently experiencing a transition out of your caring role*, the researchers would like to hear from you.
Participation involves an in-depth interview with one of the research team members, either in person or via online video platform. Participants will receive a $30 gift card for their time.
If you are interested, please contact the research team for further information: Professor Emma Kirby (emma.kirby@unsw.edu.au; 02 9385 9065); Zhaoxi Zheng (zhaoxi.zheng@unsw.edu.au; 02 9348 2625)
*Recruitment of former carers will commence later in 2025.
This survey is part of a collaborative research project led by the Care Economy Research Institute (CERI) at La Trobe University, in partnership with The Asia Foundation Malaysia, Australia, and MyAgeing at University Putra Malaysia (UPM). The study explores how home-based care is currently provided in Malaysia and Australia, in response to changing demographics and increasing care needs.
We invite you to take part in a 10-20 minute survey to share your experiences with home-based care. For this study, home-based care refers to support provided to individuals in their own homes. This may include services delivered by nurses, allied health professionals (e.g. physiotherapists, occupational therapists, podiatrists, allied health assistants), home care workers (e.g. personal care and meals), and domestic assistants (e.g. cleaning). It also includes people providing support outside the home, such as transport to appointments, help with shopping, or social activities like coffee clubs. The care provided could be formal (paid) or informal (unpaid).
The survey focuses on care for older adults-defined as those aged 65 and over, or 55 and over for Aboriginal and Torres Strait Islander peoples.
If you are 18 years of age or older and are either a formal care provider (paid) or an informal caregiver (unpaid) or you are an older adult who is receiving informal or formal care, you are eligible to participate in this survey.
Your participation is voluntary, and all responses are anonymous and confidential. The data collected will be analysed and used to identify gaps in the home-based care system, helping to inform future research and policy reforms. A summary of the findings will be shared publicly on the La Trobe University website, presented at conferences, and may be published in peer-reviewed journals.
While we do not anticipate emotional distress from participating, we acknowledge that some questions may be sensitive. If you feel affected, please seek support from your usual networks or contact the project manager, Jennifer Boak, at j.boak@latrobe.edu.au.
To participate in the survey click here. Download the research flyer here Home-based care experience survey.
Communication Connect: Now Recruiting Carers
Communication Connect is a website developed as part of a government-funded research trial led by La Trobe University. It was co-designed with carers, people living with communication disability, health professionals, and researchers.
The website includes:
You can participate in our research if you:
Contact Communication Connect for more information:
Phone: (03) 9479 5080
Email: communication.connect@latrobe.edu.au
Watch the video: Communication Connect: The Carer Portal
If you live in Victoria, are over 18, and have supported an adult facing cancer within in the last 2 years, we would love to hear from you!
The Cancer Carer Hub at Deakin University is researching an online mindfulness program (Carer_MindOnLine) to help reduce stress and manage thoughts and feelings.
Study details
Program: A 9-week mindfulness course with short videos and activities.
Participation: Eligible participants will complete a short survey and be assigned to either the immediate access group or a waitlist group (program access after 9 weeks). Both groups will complete a short survey afterwards.
For more information and to access the program click here.
You can also contact the Research Team at carermindonline@deakin.edu.au
The study has been approved by Deakin University's Research Ethics committee (2023-358).
We are a team of dancers, psychologists, and researchers committed to making dance more inclusive and accessible for Autistic children.
Monash and Deakin Universities are running a research program to explore how dance can benefit Autistic children and their families.
Families in Victoria, Australia with children who:
Dance for 9 weeks! Your child will join fun and inclusive weekly dance class. The classes will have a contemporary
dance focus and be led by dance and disability specialists at Deakin University Dance Studios in Burwood.
👉 Your child will attend 2 face-to-face sessions to complete thinking and movement tasks.
👉 You will complete 3 online surveys about your child’s abilities and experience
A new research study developed by and for members of LGBTQI+ communities aims to improve support for gender and sexuality diverse people living with dementia.
The study is searching for research participants who:
All participants do not need to use speech to communicate to be involved, as researchers will use creative approaches to support their involvement.
During the study, researchers will visit each participant four times and participants will engage in their normal daily activities. Participants will receive a $50 voucher per visit. With their consent, the researchers would also like to talk to people who know the person living with dementia.
If you would like to participate or if you know someone who may be suitable, please contact Dr Louisa Smith on 03 9246 8364 or email louisa.smith@deakin.edu.au.
Participate in a survey about resources to support family/carers, and older adults to prepare for life at home after hospital discharge
Greek/Italian/Chinese (Cantonese and Mandarin speaking) Australian family/unpaid carers and older adults
Monash University is seeking family/unpaid carers of older adults and older adults living in the community who identify as Greek/Italian/Chinese (Cantonese and Mandarin speaking) Australian to review One patient/carer resource of their choice and then participate in a survey. The survey aims to get feedback that the researchers can use to improve the resource. Eligible people are Greek/Italian/Chinese (Cantonese and Mandarin speaking) Australians:
Click on the link below to access the resource and survey. This one link provides access for all languages – English, Greek, Italian, Chinese (Traditional and Simplified)
https://monash.az1.qualtrics.com/jfe/form/SV_6fgdJgdCowI0ha6
For more information and questions about participating, please contact Yaping Zhong on 0405 396 468 or by email yaping.zhong1@monash.edu
