It is estimated that across Australia 3 million people provide care for friends or
family members who are ill, have a disability, an addiction, or who are frail. Each year, the Carer Wellbeing Survey asks current and past carers to tell us about their experiences of being a carer. You can read the results from our previous surveys here.

In 2025, we are again asking carers around Australia to tell us about their caring experiences in the Carer Wellbeing Survey. This year, in addition to asking about your wellbeing, we are asking more about experiences with accessing respite care, as well as asking young carers and carers in defence families to tell us about their experiences with being a carer. We would also like to ask past carers to share more about what it is like adjusting after their caring role stops.

For more info and to complete the 2025 survey click here. 

Developed collaboratively by the University of Canberra’s University of Canberra’s WellRes Unit, Health Research Institute, the Department of Social Services, and Carers Australia, the survey results are analysed by the University of Canberra.

All survey participants aged 14 or older who complete the survey before 18 April
2025 can enter our prize draw to win one of 13 prizes worth a total of $5,000,
including a first prize of a $1,500 gift card, second prize of a $1,000 gift card, third prize of a $500 gift card, or one of 10 runners up prizes of a $200 gift card.

You can have one or more entries into the prize draw depending on whether you do a shorter or longer version of the survey. Winners will have their choice of gift cards from www.giftpay.com.au

The survey is voluntary, confidential and results are kept anonymous, and closes on  30 April 2025, at 11.59 pm.

For more info and to complete the survey click here. 

Participate in a survey about resources to support family/carers, and older adults to prepare for life at home after hospital discharge 

Greek/Italian/Chinese (Cantonese and Mandarin speaking) Australian family/unpaid carers and older adults 

Monash University is seeking family/unpaid carers of older adults and older adults living in the community who identify as Greek/Italian/Chinese (Cantonese and Mandarin speaking) Australian to review One patient/carer resource of their choice and then participate in a survey. The survey aims to get feedback that the researchers can use to improve the resource. Eligible people are Greek/Italian/Chinese (Cantonese and Mandarin speaking) Australians: 

• Family and unpaid carers in the community 

• Aged 18 years or more 

• Supporting an older adult living at home with chronic health difficulties 

• With experience supporting (within the last 2 years) an older adult during discharge from hospital to home for a physical health problem  

• Older adults 

• Aged 60 years or more 

• Have experience (within the last 2 years) of discharge from hospital to home following admission for a physical health problem 

Click on the link below to access the resource and survey. This one link provides access for all languages – English, Greek, Italian, Chinese (Traditional and Simplified)

https://monash.az1.qualtrics.com/jfe/form/SV_6fgdJgdCowI0ha6  

• Printed versions of booklets and surveys with reply paid envelopes are available, please contact Yaping Zhong on 0405 396 468 or by email yaping.zhong1@monash.edu 

For more information and questions about participating, please contact Yaping Zhong on 0405 396 468 or by email yaping.zhong1@monash.edu

Are you a person with disability, a disability worker, carer or service provider?

The Victorian Disability Worker Commission (VDWC) is wanting to hear from you on a range of topics including registration of disability workers, complaints and notifications under the Victorian Disability Worker Regulation Scheme.

VDWC is seeking your participation in their annual disability sector survey. The survey will take around 15 minutes, and to thank you for your time, one in 10 respondents win a $100 GiftPay voucher.

The information received will help VDWC to identify what people with disability, their families and carers, disability workers and service providers need when engaging with and registering under the Scheme.

The survey is open until 21 May and is being run by an independent company ORIMA Research. No personal information will be provided to the VDWC and responses are grouped in the report.

Complete the survey here: https://dr.octopusgroup.com.au/survey/VDWC25?respondentId=open

Or you can do the Easy Read version here: https://dr.octopusgroup.com.au/survey/VDWC25_EasyRead  

If you have difficulties with the online survey, or need to complete the survey in another way, please email VDWCsurvey@orima.com or call ORIMA on 1800 883 345. Tell them it is about the VDWC survey.

There are significant changes coming to how home care is offered and delivered in Australia from the 1st of July this year. We're seeking input from those already using home care and their family members. Also, those who will consider this service in the future for themselves or a family member. 
 
The survey takes 10-15 minutes. Most questions are optional and can be skipped. There are no right or wrong answers and your feedback will remain confidential. 
 
Respondents providing useful insights will be selected to receive one of twenty $150 gift cards as a thank you for participating. 
 
We really appreciate your thoughts and they will help home care providers do a better job now and in the future. 

Click here to take the survey.

About the study:

Researchers from UNSW Sydney, the University of Melbourne and Deakin University, in partnership with Carers Vic, are conducting a major three-year research study to improve understanding of transitions and pathways out of caring.

If you have had thoughts about how your caring may end in the future or are currently experiencing a transition out of your caring role*, the researchers would like to hear from you.

Participation involves an in-depth interview with one of the research team members, either in person or via online video platform. Participants will receive a $30 gift card for their time.

If you are interested, please contact the research team for further information: Professor Emma Kirby (emma.kirby@unsw.edu.au; 02 9385 9065); Zhaoxi Zheng (zhaoxi.zheng@unsw.edu.au; 02 9348 2625)

*Recruitment of former carers will commence later in 2025. 

Researchers at NARI and Austin Health are currently undertaking a research project called the “3C Program”. The program aims to improve health outcomes for individuals accessing respite care. The 3C team are seeking participants for this research project, who are: older adults entering respite care at a Melbourne based residential aged care facility AND the day-to-day carers of these people. Carers and respite recipients would participate in the program as a pair.  

The program involves a 1-2 hour visit at your home or at another location that is private and safe (like an aged care home). This visit will occur before you enter respite care or as close as possible to the beginning of your respite stay. A registered nurse would carry out this visit and undertake the following with the two of you (respite recipient and carer):

• A comprehensive health assessment involving a clinical examination and medical assessment tools.

• Development of a health summary document using the data from the health assessment.

• Filming of some videos that demonstrate you going about your day-to-day life. We will ask your permission to record you on camera carrying out some tasks.

The 3C Program team will then pass on this information and content to respite care staff at the aged care facility you will be admitted too. It is hoped that this information and content will help staff provide better quality respite care to participants. Later, after your respite stay, the 3C team may also ask you to help them evaluate your experience of respite care and the 3C Program. They may also conduct some follow up assessments to see how you are going following your respite stay.

If you are interested in helping out and would like more information, please contact NARI Research Assistant Liam Borelli-Millott at L.Borelli-Millott@nari.edu.au, or call him on 0487937265 (Available: 9am-5pm, Mon-Wed). You may also contact the project manager, Dr. Christa Dang at C.Dang@nari.edu.au.

Your participation would be greatly appreciated by the 3C team.

There’s no remuneration and recruitment period is 12 months.

Invitation to participate in research

About the study

Victoria University is looking for people over 18 years of age and living in Australia, who are currently providing care for a family member or friend with dementia.

The aim of this study is to better understand the experience of carers of people living with dementia.

They want to know more about:

• The impact of caring on your life and your mood
• Your knowledge and beliefs about dementia
• Your experience of dementia-related stigma
• Your response to changed behaviours
• Positive aspects of caring.

You will be asked to complete a confidential online survey. The survey will take approximately 30 minutes to complete.

To learn more, call (03) 9919 4505 or visit: https://vuau.qualtrics.com/jfe/form/SV_6GrZgyuMnBY1G7A